“FROM ETHICS TO LAW”
September 11, 09:45-15.30

Conference Centre Atlantis

Seminar on ethical and legal aspects of genetic research organized by the Council of Europe and the Estonian Genome Project Foundation as a pre event of the Gene Forum 2003.

09:15-09:45 Registration

09:45-10:00 Prof. Arvo Tikk, Ethics Committee of the Estonian Genome Project Foundation, Tartu University Clinics, Estonia

Introduction

10:00-10:30 Mr. Jüri Raidla, Attorney at Law, Raidla & Partners Law Office, Estonia

“General considerations behind Estonian Act on Human Genes Research”

10:30-11:00 Mr. Ants Nõmper, Attorney at Law, Raidla & Partners Law Office, Estonia

“Voluntary nature of gene donation”

11:00-11.30 Coffee break

11:30-12:00 Prof. Judith Sandor, Central European University, Budapest, Hungary

“The protection of genetic privacy”

12:00-12:30 Prof. Alexander McCall Smith, University of Edinburgh, UK

“The right of a gene donor to know and not to know his or her genetic data”

12:30-14.00 Lunch

14:00-14:30 Prof. Thomas Baldwin, University of York, UK Stem Cell Steering Committee, Nuffield Council of Bioethics, UK

“How far is it legitimate to patent human DNA sequences?”

14:30-15:00 Mr. Tarmo Sild, Attorney at Law, HETA Law Office, Estonia

“Genetic data as the object of the ownership relations”

15:00-15:20 Dr. Valdis Pirags, P. Stradins University Hospital, University of Latvia, Latvia

“Protection of the rights of gene donors in genome database of the Latvian Population”

15:20-15:30 Peteris Zilgalvis, J.D., Bioethics Division, Council of Europe, Strasbourg, France